Month: March 2026 (Page 11 of 24)

Blog update 24

Still fighting with the NDIS. I have an OT assessment in early April. This week more good news. The thorasic doctors missed the irregular heart beat last month when I was in ED. The top chamber of the heart is pumping over time. Which could have given me a stroke large enough to kill me. I get a 145 heart rate just having a shower. I’m now on blood thinners and another medication to slow the heart. Next month when Ive stabilized Im having heart surgery where they put a catheter into the femoral vein in my groin and laser out the damaged sections in that chamber of the heart. Which hopefully fixes the fluid over load issues that keep putting my in hospital every month.

BUT STILL NOT SICK ENOUGH FOR NDIS ASSISTANCE………..

What really pissed me off is a comment from my dads side of the family a month ago that Ive sat on. Saying “Atleast your not really sick blah blah blah and stop hassling the NDIS”. They expressed this same attitude with my mother when she was ill. Up until the day they attended her funeral. She died on the operating table getting a new set of lungs. I didn’t attend her funeral because they were going. Didn’t speak to them for years. I tried to keep in touch with them after my fathers death but after two separate incidences that have shown their true characters of the remaining relatives without the masks I have wiped that entire side of the family and left instructions that they are not to attend my funeral. I spent my teen years trying to keep the household together while dad worked to pay all the medical bills. We even had to sell the house at one stage and buy a smaller one. So when I see some young useless kid that cant cook or even do dishes I am truly disgusted. I spent my teen years cooking , cleaning and trying to do training courses in between with voluntary work in Search and Rescue before even attempting to find work. my dad didnt even know how to cook or pay the bills after I moved out. I took care of everything.

old habit i document everything when I have the energy

Tissue Gate

With the current careers that come in to help me. I have had three really good ones. An Aussie, an African and a Palestinian. Most are average. Some i just want to leave. Had to explain to one the other week how to use a power extension cord. Another uses only one had to sweep. id say many of them have never used a mop or broom in their lives. I dont know how many of them even passed basic career training courses just from language levels.

More than 50% on NDIS are under 18. Is that due to inbreeding ? Or using drugs when pregnant ? Are we the most disabled country on the planet or just stupid… Ive been dealing with the NDIS for 7 years now and from the past 6 months dealing with the tribunal I can honestly say I have never delt with so many stupid people in my life. My only goal is to live long enough to testify at a royal Commission and to have every single person that has signed off on my paperwork in the past 7 years to be investigated and charged with criminal negligence.

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