Category: Other (Page 1 of 24)

Still fighting with the NDIS. I have an OT assessment in early April. This week more good news. The thorasic doctors missed the irregular heart beat last month when I was in ED. The top chamber of the heart is pumping over time. Which could have given me a stroke large enough to kill me. I get a 145 heart rate just having a shower. I’m now on blood thinners and another medication to slow the heart. Next month when Ive stabilized Im having heart surgery where they put a catheter into the femoral vein in my groin and laser out the damaged sections in that chamber of the heart. Which hopefully fixes the fluid over load issues that keep putting my in hospital every month.

BUT STILL NOT SICK ENOUGH FOR NDIS ASSISTANCE………..

What really pissed me off is a comment from my dads side of the family a month ago that Ive sat on. Saying “Atleast your not really sick blah blah blah and stop hassling the NDIS”. They expressed this same attitude with my mother when she was ill. Up until the day they attended her funeral. She died on the operating table getting a new set of lungs. I didn’t attend her funeral because they were going. Didn’t speak to them for years. I tried to keep in touch with them after my fathers death but after two separate incidences that have shown their true characters of the remaining relatives without the masks I have wiped that entire side of the family and left instructions that they are not to attend my funeral. I spent my teen years trying to keep the household together while dad worked to pay all the medical bills. We even had to sell the house at one stage and buy a smaller one. So when I see some young useless kid that cant cook or even do dishes I am truly disgusted. I spent my teen years cooking , cleaning and trying to do training courses in between with voluntary work in Search and Rescue before even attempting to find work. my dad didnt even know how to cook or pay the bills after I moved out. I took care of everything.

A shit show calling themselves the NDIS. Bureaucrats that spend their time pushing paper and torturing disabled people.

Thankyou for justice Matters for supporting what Ive been going through for the past 6 years with the NDIS and 7 months with the tribunal.

https://www.youtube.com/@JusticeMatters.au1/videos

So if you haven’t been keeping up to date with my blog updates. I was placed on disability with 4 damaged discs after two back operations. Then told I was terminal with 2 years to live. Waited 18 months before receiving my first bilateral lung transplant. That lasted for 2 years before having chronic rejection . I was stabilized with 25% lung capacity and spent the following 9 years on oxygen before once again being told I was terminal with a year to live. I lasted 15 months before going to hospital. I was about to be taken off the transplant list and they called me the night I ended up on the ward for a second transplant. I spent 58 days in ICU and dragged myself out of there in a gutter frame weighing 50 kilo. Since then. I had two years of rehab for the scar tissue in my right groin from a 90 litre blood transfusion. Ive had throat cancer, shoulder cancer, a ruptured quad tendon. Torn the tendons in my right bicep and deltoid. In the past 6 months I have been told I have multiple organ failure. Stage 3 kidney failure, fluid in the lungs from right side heart failure and been placed on permanent oxygen with 56% lung capacity down from 68% a few months ago and yet I have been told Im still not sick enough to get any NDIS funding. I was living in my car for the past two years before being given a flat for my oxygen requirements. I have been close to a prisoner here maybe getting out once a week or for doctors appointments. A month ago I had my first eye surgery. I was classed as blind enough I couldn’t see to drive and have been relying on mates for shopping etc. Atleast now I can order on the computer for deliveries of food. This is how the NDIS treat disabled people in this country.

End of year blog update.
So far I had alukemia scare and spent the week in hospital including Christmas day with raised heart enzymes. Good news is I get myeyes operatedon the 6th and will be able to see well enough again to start writing more. Still arguing with the NDIS with them claiming i cant prove I disabled enough and suggested i had a third double lung transplant rather than rewquie their assistance. We llIll be abletosee withoutblowing up the font to 24 and do proper spacing again in a few weeks.Decidedto still dobushcraft posts.Had somegood advice.If I still enjoy it then dont give it up.It may just be setting up hot tents in the back yard testing productsinstead of goingbush.

Still having fun with the NDIS flith. The tribunial has been adjourned another 3 months. May have gotton some short teleprinter the interim, still waiting. In the meantime i have stopped driving. My eyesight gets operated on in two months and will be able to start writing more again without using the phone to zoom in.its too hard trying to look through mist to see the screen. I managed to save enough to get work done on the van but have found out I need another $2500due to siezed injectors.On top of that my white blood cells are through the roof and the other markers show normal. so if a week of antibiotics dont being the cell count down Im to be refered to a arhaeologist for lukemia. Yet the NDIS still are saying i cant prove Impermanently disabled after 25 years of disability, or the best one is that I can stilldo things it just takes me 4 hours instead of 30minutes and two days torecover.Fuckers !

Just got out from another 12 day stay in hospital. I had spread it out to 6 weeks from 3 weeks. 2 litres of fluid in my lungs. Have been informed I have multiple organ failure. All though the kidneys have been at stage 3 for ten years. I have been placed on permanent oxygen. I dont know if Ill be continuing with the bushcraft section of the blog..I wont be spending large quantities of cash on toys to try out but might continue the smaller items.Will be selling my van, trailer and some of my knife collection.Ill be cleaning out my camping gear much of which has not been used. posts forthcoming.

Had a few chats with others in the bushcraft community. Rick J Peterson and Dan from Ochoco Bushcraft. I started this blog to show what disabled people could do if their heart was in it.I was told to do what brings contentment and joy. Im not sure I know what that is anymore.

Im a Retard Martial Artist, short answer long.

I was asked this question some time ago and its taken a while to answer.
When Im healthy, Im the type of retard that trains 4 nights a week in 6 different martial arts.
When I injured Im the type of retard that still attends training covered in bruises.
When my instructors need a hand rebuilding the dojo, Im the type of retard that packs up my tools and turns up every week until the job is done.
When Im at seminars, Im the type of retard that after training hard all weekend.Ill say I may have to sit out the punching today and lift my shirt and show my stomach and chest covered in bruises.
Im the type of retard that still shows up to sit and watch training when Im too injured to train.
Im the type of retard that even though Im nursing an injured ruptered quad tendon and reduced lung capacity will still get up off a chair to help out with partner training, when theres an odd number of students.
Im the type of retard that trains even though Im on disability.
Im the type of retard that gets home and takes endone and skulls two beers from the pain after training.
So Id say Im a Retard Martial Artist.

I like the new channel Randall.