contactus@network10.com.au
Minister.Rishworth@dss.gov.au
senator.hanson@aph.gov.au
To Amanda Rishworth MP
RE NDIS
NDIS number ^&*&^%$##
Dear Amanda
I am writing to you in disgust to find out exactly what information is required on my NDIS application. I was contacted on Friday the 21st or March notifying me that I did not meet the criteria for assistance. That is after 6 years of filling out bloody paperwork.
Injury list highlights
L4 to S1 back injury 2 operations
2003 first bilateral lung transplant
2014 second bilateral lung transplant
throat cancer
shoulder cancer
severed quad tendon
sternum broken 3 times
scar tissue right groin 90 litre blood transfusion
left shoulder severe arthritis which will require a new joint
tore the tendon off my right bicep a few months ago
60 % lung capacity
28 % nerve damage left leg
Dyslexic
Diabetic
2001 L4 to S1 back injury 2 operations – not even going into that and the amount of pain. 10 panadiene forte a day and a 6 pack of beer a day to function for years.
2003 first bilateral lung transplant – 38 days in ICU 60 kilo from 85 kilo. the nerves to the lungs didn’t kick in straight away I had to try and walk with a respirator in the neck trying to get them to work. I barely made it to the door from the ward bed the first day. The transplant lasted two years and I had broncalits obliterans, went down to 25% lung capacity spent 9 years on an oxygen hose until they said I was going into respiratory failure and had a year to live. I lasted 15 months and the night I went into hospital for the last time I was called for the second set.
2014 second bilateral lung transplant – 58 days in ICU 50 kilo couldn’t get out of bed, it took four people to lift me into a chair and I couldn’t even hold my head upright from loss of muscle mass. dragged my arse around in a gutter frame trying to get my legs to work . was in hospital for four months. started back in martial arts 6 months later. the scar tissue in my right side put me on endone for 2 years. I was coming home from training and taking an endone and chugging two beers to stop the pain.
throat cancer, shoulder cancer – cut it out no chemo. had to dig out a piece the size of my thumb out of my shoulder twice.
severed quad tendon 6 months in a leg brace another 3 months trying to bend the leg.looking at a 3 year recovery or more ?
scar tissue right groin 90 litre blood transfusion 2 year recovery. the aorta was too short when attaching the lungs. 90 litres should have killed me. the scar tissue swelled up like a big German sausage. they cut it out and I had to wear a vacuum drain till it healed. . they gave up knocking me out for the removal of the foam from the wound and would give me two endone as the foam goes solid over a week. As nurses do they leave the call bell just out of reach and i had to help the doctor pull out the foam.the hole was large enough to put my fist in. as mentioned two years dragging my leg around, skulling beer and endone at the end of the day.
tore the tendon off my right bicep a few months ago. The whole arm swelled up to three times its size and they thought I had compartmental syndrome. which requires cutting 6 inch cuts into the muscle to relieve the pressure. just missed out on that. 100mg of fentanyl and two endone to relieve the pain. didnt even feel it. takes 200mg to knock me out for a broncosopy. Ill be pulling the hose out of my throat at 150mg.
So Four years in a wheel chair and 12 years of my life on an oxygen hose. Had to walk the dogs from a mobility scooter and too many times to count how many times in gutter frames. The nurses had to steal them in the finish to stop me from dragging myself from the ward bed to try and exercise to try and get the legs or the lungs to work. I kept wearing myself out. I became hooked on latte’s from trying to make my goal to walk from the ward to the hospital cafe every day. It didn’t matter how long it took me and an hour to recover sitting there outside the ward as long as I did it.
Im on a mixture of tramadol, endone, lyrica, panadiene forte. I try to stick to panadol osti unless I have a flare up and no longer touch alcohol.
As of 2005
My weight has now dropped to 60 kilo. I normally sit at 75 to 79 kilo, I was a low as 57 kilo, I have torn the tendon off right bicep limiting the amount I can lift and had close to 20 hospital admissions within the last year. The doctors were saying i had a possible heart condition due to the fluid building up in my lungs this has now been explained as one of my medications causing the problems after asking for CONSULT WITH CARDIAC AND KIDNEY SPECIALISTS FOR THE PAST THREE MONTHS . I have also had multiple lung infections and diagnosed with stage 3 kidney failure.
I require help on a daily basis I have to drive to ^^&& ((&^$ to have a mate help change the bed as I cant lift mattress due to left shoulder arthritis and back. Creating pain.
Its the first time Ive managed to do the dishes since my second to last hospital admission due to being too tired relating to lung capacity. Ive been Living off paper plates.
I Haven’t done house work in two months due to back and lung capacity. I can manage 2.5 minutes on the excersise bike and have to take a two minute break when first exiting the hospital I can now manage 5 minutes at a time to build up to a 20 minute regime.
Transport from hospital, I have to be transferred from the local hospital since only the %^& will accept me being a transplant patient this is located an hour from my living arrangements and have to rely on friends if they are not working to pick me up as I have no other way of getting home.
I have to park 500 meters from the hospital and try walking up a gradient to make appointments and have to stop and catch my breath all the time and hobble with tendon repair.
I am trying to find a house through housing &***, towards home and junction Australia closer to the hospital to be more independent within a $30 uber fare reducing my chances of getting a house
I require support to attend appointments at hospital due to driving and parking conditions.
Doing shopping at a supermarket my leg gives out part way through pushing a trolley leaving me on pain killers the remainder of the day, if i push any further my back seizes up.
Haven’t been able to work out at gym for several months to do rehab on my leg or shoulders and back due to reduced lung capacity from extensive hospital stays. Takes me several months of trying to ride the bike at the gym. 2.5 minutes at a time to try and build up my capacity to where I can do 15 minutes straight. Otherwise I do weight work and end up back in hospital with exhaustion.
I cannot lift above shoulder height without incurring sever pain
Bending over to lift or do gardening , half my diaphragm doesn’t work resulting in me loosing my breath and having panic attacks.
Pain killer Management I am currently on lyrica and panadiene osti for back and leg pain with endone and tramadol when major flare ups occur.
If I sit for too long my left leg becomes numb.
During extended periods or duress my oxygen level drops to 90% resulting in panic attacks and I cant breath.
Any extended sitting results in my back aching. I can not do house work due to dust inflaming my lungs or inflaming back and leg pain. I cannot kneel at all steeping off a curb with out bracing my leg will result in the leg collapsing under me.
I can not even lift my mattress to change the sheets due to the arthritis in my left shoulder and the torn tendon in my right arm.
After trying to rehab my lungs and leg at the gym I have trouble in the shower with panic attacks due to the lung capacity. Any sort of excersise drops my oxygen level and i cant breath.
I have to piss sitting down or it runs down my leg.
On a bad day I have trouble walking into a deli to purchase a pie without running out of breath.
It takes me six weeks to build my lung capacity back up after one week in hospital.For the past four years I have had to do all my own rehabilitation and have no help from any government agency, having to rely on friends most of the time.
Pain wise I have pain in my lower back, pain in my left knee, pain in my left shoulder, pain in my right shoulder. This is generally constant unless taking pills or drinking beer, usually combining them which means i cant concentrate. So I prefer not to take anything until I need a break.
So HOW DO I NOT FIT THE CRITERIA ? thank you
Regards %^^&& &&^%% AKA FUKUVERYMUCH
P.S Bill Shorten SUCKS.
